How Do You Think About Your Cerebral Palsy?

Over the past two months a certain word set appears reoccurring in my blogging and vlogging endeavors, “with cerebral palsy (CP).” Just take a look.

“Shoe Shopping with Cerebral Palsy”
“Concert Going with Cerebral Palsy”
“Going to the Ballpark with Cerebral Palsy”

How do you think about your cerebral palsy?

Image courtesy of Master isolated images / FreeDigitalPhotos.net

This catches my attention because when going about these activities I’m not consciously thinking “Oh, I need to keep this in mind because of my CP.” Last year when I saw Tim McGraw at Blossom I didn’t say “I better bring my cane because I have cerebral palsy.”

Instead I think about my specific symptoms. So take the Tim McGraw example I already brought up. I grabbed my cane before heading out to the concert because I thought “I want to be as far down as possible on the lawn seats. I’ll need the cane so I don’t fall going down the hill that is the lawn area.” In said instance I’m focusing on neutralizing my balance issues rather than the label cerebral palsy.

How about another example? When shoe shopping I’m not thinking “Will these shoes work with my CP?” Nope. I’m thinking “Will my inserts fit into these shoes?” I consider my inserts something I need in the same way a cop needs a badge or a waitress needs to balance a tray filled with drinks or food.

Really internally I rarely use the words cerebral palsy. Only when I share my experiences, do I turn to my diagnosis. The term cerebral palsy maintains one valuable function I believe, to communicate. Us in the CP community can communicate with each other and express comparable life experiences. Similarly we can communicate to the able-bodied world and create better CP awareness.

Inside my own head though, I don’t need to communicate about CP because I already know. I recognize my poor balance and other special needs. However, I view those in context with who I am as a whole person. To me I’m Zachary, a talented writer, avid Cleveland Indians fan who happens to walk a little differently and needs a rail to ascend/descend stairs.

If you have cerebral palsy, let me pose a question to you. How often do you use the term cerebral palsy internally within your thoughts? Please answer by commenting below. Thanks!

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3 comments on “How Do You Think About Your Cerebral Palsy?

  1. nicolanoo says:

    I’d never thought about this before,

  2. nicolanoo says:

    Opps sorry I hit reply too soon there! I hardly ever use the term cerebral palsy in my own thoughts. I think sbout things they way you do. I hope these shoes give me enough support, I hope there’s room for my walking frame on the bus etc.

  3. Ryan says:

    I really don’t think about my CP either. It only really crosses my mind when I have trouble with something. I have a mild case, but for some reason buttons, zippers, and ties are pretty much impossible for me to do. But like you have written, we figure out ways to adapt to it,, so that it is second nature to us.:-)

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